Tarlov Cysts, Sexual Dysfunction, and Spine Surgery…What? Why? How?

There is a sexual disorder called Persistent Genital Arousal Disorder (PGAD) where individuals experience spontaneous, uncontrolled,  and persistent genital arousal without sexual desire. This condition causes terrible physical and emotional discomfort with many people misunderstanding and misdiagnosing it. For some of these patients, PGAD may be linked to specific spinal issues, particularly Tarlov cysts. In such cases, a spine surgeon may be crucial in both diagnosis and treatment.

Understanding PGAD and Its Impact on Life

PGAD causes unrelenting genital arousal that can last for hours or even days, leading to uncontrollable and unwanted spontaneous orgasms. This condition is not related to hypersexuality but often connected to an underlying medical disorder. For some patients, the source of the problem may lie within the spine.

Tarlov Cysts: A Key Contributor to PGAD

Tarlov cysts, or perineural cysts, are fluid-filled sacs that develop on the nerve roots of the spine, most commonly in the sacral region. While many Tarlov cysts are asymptomatic, some can be very symptomatic by irritating the sacral nerves, which are responsible for sensations in the pelvis, including the genitals, bladder, rectum, pelvic floor, as well as the legs. 

The Multidisciplinary Approach to PGAD

Treating PGAD, particularly when associated with Tarlov cysts, requires a multidisciplinary approach. Spine surgeons work alongside neurophysiologists and sexual medicine specialists to address various aspects of the condition. This team-based approach ensures that the patient receives a thorough evaluation, and a treatment plan tailored to their specific needs.

The multidisciplinary model is particularly valuable because PGAD is a complex condition with both physical and psychological components. A spine surgeon’s role is to address the physical cause—such as Tarlov cysts—while other specialists manage the urological, hormonal, and psychological aspects of the disorder.

Dr. Irwin Goldstein, Dr. Barry Komisaruk and Dr. Choll Kim

The Role of the Spine Surgeon

When PGAD is suspected to be linked to Tarlov cysts, a spine surgeon is essential in diagnosing the condition. The surgeon begins with a comprehensive neurological assessment, reviewing the patient’s medical history and symptoms to identify potential spinal causes.

Advanced imaging techniques, particularly MRI, are used to detect Tarlov cysts and assess their impact on the surrounding nerves. The surgeon’s expertise is critical in correlating the imaging findings with the patient’s symptoms, determining whether the cysts are the source of the PGAD. Not all Tarlov cysts cause symptoms, so the surgeon must differentiate between symptomatic and asymptomatic cysts and consider other potential spinal issues.

If Tarlov cysts are identified as the cause, the spine surgeon decides whether surgery is necessary based on the severity of the symptoms and the extent of nerve compromise. This decision is made carefully, with the goal of providing the most effective relief while minimizing risks.

Click here to watch a short video about how a spine surgeon can be a sexual medicine expert.

Surgical Intervention and Treatment Options

For patients whose Tarlov cysts cause significant symptoms, including PGAD, surgical intervention may be necessary. Spine surgeons that specialize in minimally invasive procedures will drain or remove Tarlov cysts, which relieves nerve pressure and reduces PGAD symptoms. These procedures, involve small incisions and advanced techniques, offering the benefits of quicker recovery times, less postoperative pain, and a low risk of complications.

In addition to surgery, as mentioned previously, the spine surgeon may collaborate with other specialists to ensure comprehensive care. For example, pelvic floor physical therapists can help with postoperative rehabilitation, while psychologists can provide support for the emotional challenges associated with PGAD.

The Importance of Early Intervention

Diagnosing and treating PGAD early is important, especially when Tarlov cysts are involved. Delayed treatment can lead to prolonged discomfort and worsening symptoms. A spine surgeon’s expertise in identifying and treating these spinal abnormalities can make a significant difference in a patient’s prognosis. By addressing the underlying cause of PGAD, spine surgeons help patients regain control over their lives and improve their overall well-being.

Conclusion

There is hope for individuals struggling with PGAD linked to Tarlov cysts. Experts in diagnosing and treating the causes of PGAD can offer significant relief. You don’t have to face this condition alone. With early intervention and a collaborative approach, there is a real possibility of regaining control over your life and finding relief from the distressing symptoms.

Click here to watch a short video on Tarlov Cysts and Sexual Dysfunction.


FAQs

What is the connection between Tarlov cysts and Persistent Genital Arousal Disorder (PGAD)? Tarlov cysts are fluid-filled sacs that form on the nerve roots of the spine, particularly in the sacral region. When these cysts compress or irritate the sacral nerves, which control genital sensation, they can lead to symptoms of PGAD, such as persistent genital arousal without sexual desire.

Why are spine surgeons involved in the treatment of PGAD? Spine surgeons are involved because PGAD can be associated with spinal abnormalities, like Tarlov cysts, which may compromise nerves linked to genital sensations. Spine surgeons have the expertise to diagnose these issues and perform surgeries to treat symptomatic Tarlov cysts.

What treatment options are available for PGAD related to Tarlov cysts? Treatment options include conservative management, such as medication and physical therapy, as well as surgical interventions. When non-operative treatments fail and the Tarlov cyst is identified as a major cause of symptoms, surgeons recommend minimally invasive Tarlov cyst surgery.

How many doctors specialize in treating PGAD with a focus on spinal causes like Tarlov cysts? Currently, only a few highly specialized doctors focus on treating PGAD, particularly when it’s associated with spinal conditions like Tarlov cysts. These specialists combine expertise in spine surgery and sexual medicine, making their combined knowledge critical for effective treatment.

What are the symptoms of Tarlov cysts that might indicate a connection to PGAD? Symptoms of Tarlov cysts that might be linked to PGAD include lower back pain, sciatica, bladder or bowel dysfunction, and unexplained genital sensations such as tingling, throbbing, or persistent arousal.

Is surgery the only treatment for Tarlov cysts causing PGAD? Surgery is not the only treatment, but it is often recommended when conservative measures, like medication or physical therapy, do not alleviate symptoms. Surgery aims to relieve nerve pressure and can be highly effective in treating PGAD symptoms.

What should I expect during a consultation with a spine surgeon for PGAD? During a consultation, the spine surgeon will review your medical history, conduct a physical examination, and order imaging tests, such as an MRI, to assess the presence of Tarlov cysts or other spinal abnormalities. The surgeon will then discuss potential treatment options based on the findings.

How successful is surgery in treating PGAD caused by Tarlov cysts? Surgery for PGAD caused by Tarlov cysts can be highly successful, especially when performed by a spine surgeon experienced in a multi-disciplinary program. Many patients experience significant relief from symptoms and an improved quality of life post-surgery.

Can PGAD recur after surgery for Tarlov cysts? While surgery is often effective, there is a possibility of recurrence or the development of new symptoms. Regular follow-up with your spine surgeon and adherence to postoperative care instructions are essential for minimizing the risk of recurrence.

How soon should I seek treatment if I suspect Tarlov cysts are causing my PGAD? It’s important to seek treatment as soon as you suspect a connection between your symptoms and Tarlov cysts. Early diagnosis and intervention by a spine surgeon can prevent the worsening of symptoms and lead to more effective treatment outcomes.

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